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Dad & Mom Disappointed?

by Kurt W. Franke

 

To be perfectly honest, I don’t think my mother and father were ever disappointed with my disability and me. They never felt that I wasn’t doing my best at the time of my disability. All through the following years, they respected me greatly and offered me all of their genuine, parental support.  

            Certainly though, they quickly saw what took years for me to see: the repellant way people treat others who are different. I was young when I lost my right arm, and my parents were adults, of course. Being adults, they surely saw the gruesome way both friends and strangers viewed me.  I was fifteen years old and much too distracted to see what my parents were experiencing.  That is what they were disappointed about: people’s behavior concerning their crippled son. This was their disappointment. 

            Perhaps this was the worst time in their lives up to that point: worse things were on the way. They not only had to see their young son so hurt, both physically and emotionally, but also had to see the ugly side of regular public encounters. This was a shocking life-changing experience for both of them: no doubt.  

            It’s when we see these changes to those around us, because of our disability, that we begin to understand the enormity of physical disability. 

How one life can change instantaneously and so many lives change soon thereafter, forever. This not only for the participant, but also for all those who love that unlucky person. They live the life of that person’s disability through their hearts. Terrible. For those who have a loved one living within a deep terror, they live with an isolated anxiety and helplessness that resounds deep through their spirit. Their hearts are broken.

In Rhode Island, fourteen years ago, I raced sailboats with a group called the North Ocean Access Project. The purpose of this organization was to make sailing for the disabled accessible: racing and an entire social life to go with it. 

 I remember the father of this young man who was a quadriplegic. The Father was so very consumed with his son’s experiences. He asked me about playing the harmonica because all it takes is breath to play. Nothing really has to be held or manipulated: the mouth does the entire job. The father was so excited when he realized that his son, basically, could play the harmonica just like everyone else. His face lit up like 5th ave when he suddenly saw the glimmer of happiness, if only for a moment, in his son’s life. 

            For the very first time I saw how deeply hurt a parent could be. At that moment, I saw in this man’s face the desperation and fear that his precious son was living.  

In no way did this Father have any disappointment about his son.  He was discontented about life: the dirty tricks that life plays on the unfortunate few. Wondering about what we have control of and what we don’t have control over.  Why some people pay a greater, more horrendous price than the person who stands next to them sharing the same sunset. 

 For no reason at all, an unlucky soul is chosen to go to Hell for the rest of his or her life. Those who love this individual are destined to hold the hand of the beloved while watching their spirit swelter in the torment of physical disability. 

            I know I’ve never disappointed my parents while living with my disability. Their love sees past the trite-minded simplicities that bog down all those who haven’t gained the wisdom and insight that the disability experience offers. My parents gained quality in their lives in a strange way. I gave them strength. I helped them as much as they helped me. They have taught me about love and devotion; self-sacrifice and finding great inner strengths. I have taught them about themselves and what they never imagined they would ever have to face.  

I’m not proud of this: it all was by an “accident”.  I wish these learned experiences were never to be, but life doesn’t ask what you would like. Life just gives it to you: tough. 

            Disappointment doesn’t exist in the hearts of those who love you. Maybe they’re bothered that you’re not wearing the latest shirt they gave you for your birthday, but they’re not disappointed with you. That’s for sure.

 

All Rights Reserved   2002        Kurt W. Franke


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